Managing missing data, attrition and response shift in palliative and end of life care research – recommendations and guidance

Interesting post from EAPC blog on the challenges of missing data in Palliative Care research

Managing missing data, attrition and response shift in palliative and end of life care research – recommendations and guidance.

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Palliative Care Research – Call for papers and upcoming events

Conference

Are you working or researching in Palliative or end-of-life care?

Call for papers

The annual Kaleidoscope conference organised by St Francis Hospice is currently calling for papers. The 2014  Kaleidoscope conference will take place on May 28th & 29th and explores the theme of life and living at the heart of palliative care.

The call for papers closes on November 15th and the poster call will close on April 4th 2014.  Further details on the call for papers is available HERE

Upcoming events

Some additional events of interest to the palliative care community over the coming months include;

The Impact of Stillbirth

This conference hosted by the Pregnancy Loss Team, Cork University Maternity Hospital and the Department of Obstetrics and Gynaecology, University College Cork takes place on Nov 2. Taking a wide ranging look at the impact of stillbirth the conference will examines the statistics, perinatal pathology and the bereavement experience following stillbirth. Further details on this conference are available HERE 

Children’s Palliative Care: Connecting Home, Hospital & Hospice; This two day conference will take place on November 29th & 30th and is Ireland’s first interdisciplinary children’s palliative care conference  bringing together professionals working in the care of children with life limiting illness. Further details and booking information are available HERE 

Facing Loss, healing grief

This conference  hosted by Dzogchen Beara will take place between Nov 29 and Dec 1 in Dechen Shying Spiritual Care  centre. It aims to explore spiritual aspects of grief using meditation and contemplation. Further details and booking information is available HERE  

Free access to top ten Palliative & Supportive Care articles

Palliative & Supportive care Journal Cover

If you are just getting back into work stride after holidays, why not ease back with some reading.

Top Ten Cited Articles

The Journal of Palliative & Supportive Care is currently offering free access to its top ten most cited articles. The access is available until the end of August and titles cover a wide range of issues in Palliative and end-of-life care including advance directive uptake and family bereavement.

To access these articles go to the Palliative & Supportive Care site HERE 

Irish Hospice Foundation’s new report highlights deficits in access to Palliative care

Access to palliative care services and place of death in Ireland

The Irish Hospice Foundation this week launched the second report in its perspectives series ‘Access to Specialist Palliative Care Services and Place of Death in Ireland; What the Data tells us‘. The report, completed by Eugene Murray based on his research with additional analysis by Dr. Kathy McLoughlin and Sharon Foley, indicated a number of inequalities in access to palliative services in Ireland. Some core findings of the research were;

  • That hospice deficits impact where people die – areas with limited access to a hospice have more cancer deaths in acute hospital
  • An estimated 2,500 patients each year are denied access to hospice inpatient care because of lack of services in their area 

The findings emerged from an examination of data from four sources over two years. Data was sourced from the Health Service Executive’s (HSE) Minimum Data Set for Palliative Care and HSE national and regional population statistics from 2011 along with the National Cancer Registry and the Hospital Inpatient Enquiry from 2010.  This research took an ecological approach bringing together broad population data to explore trends and illustrate areas for further research.

The Irish Hospice Foundation has now called on the government to prioritize the development of a broad end of life strategy.

The full report can be read HERE  

Palliative Care Research in Ireland

The All Ireland Institute of Hospice & Palliative Care have just released a new systematic review of palliative care research conducted in Ireland over the ten year period between 2002 /2012.

The review identifies a number of  themes under which research articles have been published in the time period including, symptoms and settings, bereavement, disease groups and communication.

The review indicates a significant increase in peer-reviewed articles on palliative care in Ireland, particularly in the last five years . It also indicates a preference for needs analyses over outcome measurement research  and a need for further collaboration across institutions.

The full report including appendices with summaries of articles can be accessed online HERE. For further details of Irish research in Palliative care, end-of-life and bereavement  you can browse the Irish Hospice Foundation’s library catalogue listings of Irish Research HERE 

All Ireland Institute of Hospice & Palliative Care New Clinical Research Fellowships

All Ireland Institute of Hospice & Palliative Care LogoThe All Ireland Institute of Hospice and Palliative Care has announced four new clinical research fellowships, of €10,000 each which will be available to health and social care researchers.

The fellowships are targeted towards health and social care professionals currently working in clinical practice. Through the fellowships the institute aims to assist the development of small-scale research projects in areas related to palliative care, such as; 

  • Symptom management
  • Specific patient population groups research
  • Health service research 
  • Research to inform policy and practice

It is intended these fellowships would facilitate the development or continuation of  projects like; Systematic reviews, Feasibility or pilot study or developing, a research proposals for funding.  Further information and applications details are available on the AIIHPC website 

All Ireland Institute of Hospice and Palliative Care Ph.D. Studentship in Palliative and End of Life Care

All Ireland Institute of Hospice & Palliative Care LogoApplications are invited for a new PhD Studentship in Palliative and End-of-Life Care through the school of Nursing & Midwifery, Trinity College Dublin.

The studentship is funded by the All Ireland Institute of Hospice and Palliative Care and the Health Research Board and it aims to facilitate the recipient to conduct research into provision and challenges in access to palliative services for people with intellectual disabilities who have life-limiting or terminal conditions.

Applicants  should have a background in nursing, psychology or social sciences with strong research and communication skills.

Further details on the studentship, along with application details are available HERE