Interesting post from EAPC blog on the challenges of missing data in Palliative Care research
Are you working or researching in Palliative or end-of-life care?
Call for papers
The annual Kaleidoscope conference organised by St Francis Hospice is currently calling for papers. The 2014 Kaleidoscope conference will take place on May 28th & 29th and explores the theme of life and living at the heart of palliative care.
The call for papers closes on November 15th and the poster call will close on April 4th 2014. Further details on the call for papers is available HERE
Some additional events of interest to the palliative care community over the coming months include;
The Impact of Stillbirth
This conference hosted by the Pregnancy Loss Team, Cork University Maternity Hospital and the Department of Obstetrics and Gynaecology, University College Cork takes place on Nov 2. Taking a wide ranging look at the impact of stillbirth the conference will examines the statistics, perinatal pathology and the bereavement experience following stillbirth. Further details on this conference are available HERE
Children’s Palliative Care: Connecting Home, Hospital & Hospice; This two day conference will take place on November 29th & 30th and is Ireland’s first interdisciplinary children’s palliative care conference bringing together professionals working in the care of children with life limiting illness. Further details and booking information are available HERE
Facing Loss, healing grief
This conference hosted by Dzogchen Beara will take place between Nov 29 and Dec 1 in Dechen Shying Spiritual Care centre. It aims to explore spiritual aspects of grief using meditation and contemplation. Further details and booking information is available HERE
If you are just getting back into work stride after holidays, why not ease back with some reading.
Top Ten Cited Articles
The Journal of Palliative & Supportive Care is currently offering free access to its top ten most cited articles. The access is available until the end of August and titles cover a wide range of issues in Palliative and end-of-life care including advance directive uptake and family bereavement.
To access these articles go to the Palliative & Supportive Care site HERE
The Irish Hospice Foundation this week launched the second report in its perspectives series ‘Access to Specialist Palliative Care Services and Place of Death in Ireland; What the Data tells us‘. The report, completed by Eugene Murray based on his research with additional analysis by Dr. Kathy McLoughlin and Sharon Foley, indicated a number of inequalities in access to palliative services in Ireland. Some core findings of the research were;
- That hospice deficits impact where people die – areas with limited access to a hospice have more cancer deaths in acute hospital
- An estimated 2,500 patients each year are denied access to hospice inpatient care because of lack of services in their area
The findings emerged from an examination of data from four sources over two years. Data was sourced from the Health Service Executive’s (HSE) Minimum Data Set for Palliative Care and HSE national and regional population statistics from 2011 along with the National Cancer Registry and the Hospital Inpatient Enquiry from 2010. This research took an ecological approach bringing together broad population data to explore trends and illustrate areas for further research.
The Irish Hospice Foundation has now called on the government to prioritize the development of a broad end of life strategy.
The full report can be read HERE
The All Ireland Institute of Hospice & Palliative Care have just released a new systematic review of palliative care research conducted in Ireland over the ten year period between 2002 /2012.
The review identifies a number of themes under which research articles have been published in the time period including, symptoms and settings, bereavement, disease groups and communication.
The review indicates a significant increase in peer-reviewed articles on palliative care in Ireland, particularly in the last five years . It also indicates a preference for needs analyses over outcome measurement research and a need for further collaboration across institutions.
The full report including appendices with summaries of articles can be accessed online HERE. For further details of Irish research in Palliative care, end-of-life and bereavement you can browse the Irish Hospice Foundation’s library catalogue listings of Irish Research HERE
The fellowships are targeted towards health and social care professionals currently working in clinical practice. Through the fellowships the institute aims to assist the development of small-scale research projects in areas related to palliative care, such as;
- Symptom management
- Specific patient population groups research
- Health service research
- Research to inform policy and practice
It is intended these fellowships would facilitate the development or continuation of projects like; Systematic reviews, Feasibility or pilot study or developing, a research proposals for funding. Further information and applications details are available on the AIIHPC website
The studentship is funded by the All Ireland Institute of Hospice and Palliative Care and the Health Research Board and it aims to facilitate the recipient to conduct research into provision and challenges in access to palliative services for people with intellectual disabilities who have life-limiting or terminal conditions.
Applicants should have a background in nursing, psychology or social sciences with strong research and communication skills.
Further details on the studentship, along with application details are available HERE
‘Palliative care for all; bridging the gap for those with life limiting illness’ took place on Friday September 14th in the Royal College of Physicians.
The conference was the first of its kind in Ireland and brought together the findings of the Irish Hospice Foundation action research projects which examined palliative care pathways for patients with advanced respiratory disease, end stage heart failure and dementia.
Speaking at the conference, which drew a crowd of over 170 delegates, Professor Scott Murray of the Primary Palliative Care Research Group which is based in the Centre for Population Health Sciences at the University of Edinburgh said that General Practitioners need to stop treating the disease and take a holistic approach to caring for patients with life limiting conditions.
Conference presentations, workshop details and podcast interviews with presenters are available on the Irish Hospice Foundation website HERE
The International Association for Hospice and Palliative Care has just released its newly developed list of essential practices in palliative care.
The list was developed following a three year process consisting of three Delphi surveys and input from 410 individuals including 49 pain and palliative care organisations. Irish input to the Delphi rounds was provided by Professor Philip J Larkin of UCD School of Nursing & Midwifery and Dr Karen Ryan, HSE Clinical lead for palliative care.
The finalised list comprises 23 practices covering different interventions within areas of care including; Physical care; Psychological,emotional & spiritual care; care planning, coordination and communications. The list of essential practices aims to ease definition of appropriate palliative care and improve the overall understanding, quality and delivery of palliative care internationally.
Evidence of the physical effect of recent bereavement is also being increasingly built up. Research published last year by Buckley et al in the journal Heart, Lung & Circulation took the evidence further, highlighting changes in blood pressure post bereavement which could increase the risk of heart attack or stroke.
New research published last week by Mostofsky et al in the journal Circulation presents findings of a study surveying 1,985 people following hospital admission for heart attack. Of the cohort 270 had experienced the loss of a significant person within six months of their heart attack with 19 experiencing a cardiac incident within 24 hours of the loss of their loved one.
While the findings do not suggest that grief presents an acute or common risk for cardiac incident it does highlight an increased need for vigilance in the initial weeks and months following a bereavement and the need for sustained physical and emotional support for the grieving.