Organ Donation – Public Information Meeting

Gift of life organ donor care - Irish Kidney Association  The Irish Hospice Foundation’s Forum on End-of-Life will hold the second of  two public information meetings on Tuesday June 26th in the Alexander Hotel at 6pm

Organ donation – The Facts’ will be chaired by RTE Journalist Valerie Cox and speakers include Dr.  James O’Rourke: Intensive Care Unit Consultant,  Beaumont Hospital, Dr. Colman O’Loughlin of the Mater Hospital and
Phyllis Cunningham Transplant Coordinator at Beaumont Hospital.

The  meeting aims to provide an overview of the medical and legal aspects of the organ donation process but will also present a patient’s perspective with heart transplant recipient John Healy of RTE’s The Restaurant talking about his experience.

The meeting is open to anyone wishing to learn more about Organ Donation and additional information can be found on the Forum on End-of-Life website  


Public information meeting on Do Not Resuscitate orders and Organ Donation

 The Irish Hospice Foundation’s National Council of the Forum on End-of-Life will host two public meetings discussing Do Not Resuscitate (DNR) orders and Organ Donation in June.

These meetings, chaired by journalist Valerie Cox aim to provide members of the public with an overview of the topic, a medical and legal perspective and to frame both issues in the context of current practice.

The Do Not Resuscitate meeting which will take place in the Alexander Hotel on June 6th from 6-7.30 pm and will address the development of national DNR guidelines.

The second meeting examining the fact around Organ Donation will take place on June 26th in the Alexander Hotel from 6-7.30  and will feature speakers presenting the medical, family and patient perspectives.

Further details can be obtained by contacting Sarah Murphy on 01 6793188

Forum on end-of-life and launch of the ‘Think Ahead’ campaign – Podcasts

 On Wednesday (October 12th) the Irish Hospice Foundation’s Forum on end of life hosted its annual forum in Croke Park.

The day also saw the launch of the ‘Think Ahead’ campaign which aims to provide the public with a method of discussing and recording their end of life preferences and wishes. You can find out more about the project and fill in your own wishes on the ‘Think Ahead’ form’ on the new site HERE

For anyone who wasnt in attendance at the forum in Croke park you can listen to podcasts from the morning here

  • Recording of the morning session including the Mary Holland memorial lecture by Conor O Clery and response from Prof. Tom Inglis  – Listen HERE
  • Recording of the Mid morning session featuring the launch of the ‘Think Ahead’ website and address by an Taoiseach Enda KennyHERE (Click ‘download’  then ‘download anyway’ when link opens)
  • Recording of the afternoon session of the Forum on End-of-life Croke Park October 12 2011. Features feedback and audience questions on workshops, summary of the day by Ita Mangan and closing address by Irish Hospice Foundation board chairman Michael O Reilly. LISTEN HERE

National Council of the Forum on End of Life – Annual Forum October 12th

One can survive everything nowadays, except death…‘ Oscar Wilde

Following on from its extensive public consultation during 2009 and 2010 which culminated in the publication of ‘Perspectives on End-of-Life; report of  the forum‘ the Irish Hospice Foundation’s National Council of the Forum on End-of-life in Ireland was established in July 2010 and is now engaged in a work plan based on the public consultation. Their work plan identifies a number of areas for action and among other initiatives they are currently engaged in addressing the lack of regulation in the Irish funeral industry, more details of this are available HERE 

The range of activities of the National Council of the Forum will be brought together under the theme of ‘Resilience’ at their annual seminar to be held on October 12th in Croke Park.

The annual forum will see the formal launch of the ‘Think ahead’ project, by an Taoiseach Enda Kenny. The ‘Think ahead’ initiative aims to instigate communications about end-of-life wishes and preferences in the event of serious illness or death. The programme of talks and workshops for the forum cover a broad spectrum of perspectives on death and dying including a workshop on the Medicalisation of dying by Professor Aidan Halligan (former Deputy Chief Medical Officer for England) and the Mary Holland Commemorative lecture will be delivered by author & foreign correspondent Conor O’ Cleary.

The event aims to engage participants from a wide range of backgrounds and disciplines in examining the challenges of achieving a good death.

The full programme for the forum along with booking details are available HERE      

Starting the conversation about death & dying

This week (May 16th – 22nd) marks the second ‘Dying Matters awareness week’ in the UK. The week aims to put a spotlight on all aspects of death & dying and get people talking about everything from where they want to die to wills, legacies and their funeral arrangements.

Though the events to coincide with the awareness week all take place in the UK the Dying Matters site is worth a visit as its packed with useful resources and conversation starters all aimed at smashing the taboos around death and dying.

The resource material includes ‘Things to do before I die’, leaflets and flyers to get you thinking about how to plan for a good death. There are even specific resource materials for schools and for GP’s.

If that all seems a bit weighty you can start off with the ‘Dying for a laugh’ videos in which comedians share their feelings and experiences about death – they include Ardal O’ Hanlon recalling a uniquely Irish wake experience. For information on attitudes to death and dying in an Irish context have a look at the Irish Hospice Foundation’s Forum on End-of-life website. 

Forum on end-of-life report now available

The wait is over, the full report of the Forum on end-of-life, the year long public consultation on end-of-life issues and experiences in Ireland is now available to download.

The report marks the first comprehensive enquiry into end-of-life experiences in Ireland and represents the viewpoints of all those who participated in the forum discussions and workshops including healthcare practitioners, members of the emergency services, academics and policy makers and members of the public. 

The full report can be downloaded HERE  and the accompanying Draft action plan is available HERE