Palliative Care for all – Practice and Service Development project update now available

The Irish Hospice Foundation’s (IHF) Palliative Care for All programme, aims to extend palliative care interventions to non malignant life limiting illnesses.

Palliative care for all report 2008

Through this programme partnerships have been developed with a range of organisations to develop and deliver palliative support for diseases like Heart Failure, Advanced respiratory failure, Advance Neurological Illness and Dementia.

The latest update on these projects outlining  the activity of practice & service development projects addressing end-of-life care for people with dementia is now available.  The activities of the other aspects of the Palliative Care for All Programme are also outlined.

Palliative care for all communique July 2014

    Click to access the update HERE 

All Ireland Institute of Hospice and Palliative Care Ph.D. Studentship in Palliative and End of Life Care

All Ireland Institute of Hospice & Palliative Care LogoApplications are invited for a new PhD Studentship in Palliative and End-of-Life Care through the school of Nursing & Midwifery, Trinity College Dublin.

The studentship is funded by the All Ireland Institute of Hospice and Palliative Care and the Health Research Board and it aims to facilitate the recipient to conduct research into provision and challenges in access to palliative services for people with intellectual disabilities who have life-limiting or terminal conditions.

Applicants  should have a background in nursing, psychology or social sciences with strong research and communication skills.

Further details on the studentship, along with application details are available HERE  

A Wish – New animated video from the Hospice Friendly Hospitals Programme

How do you achieve a good death in an acute hospital setting ?

Although most people want to spend their last days in their own home almost half (48%) of all deaths in Ireland occur in an acute hospital setting.

Bridging this gap between patient wishes and hospital practice in end-of-life care has been the aim of the Irish Hospice Foundation’s Hospice Friendly Hospitals (HfH) programme.

A Wish’, the new animated short film developed by the Hospice Friendly Hospitals poignantly illustrates just how this can be achieved and the small changes that can enable a good death even in a busy acute hospital environment.

The film was directed by Rebecca Lloyd and will be made available through the Hospice Friendly Hospitals programme later this year.

Organ Donation – Public Information Meeting

Gift of life organ donor care - Irish Kidney Association  The Irish Hospice Foundation’s Forum on End-of-Life will hold the second of  two public information meetings on Tuesday June 26th in the Alexander Hotel at 6pm

Organ donation – The Facts’ will be chaired by RTE Journalist Valerie Cox and speakers include Dr.  James O’Rourke: Intensive Care Unit Consultant,  Beaumont Hospital, Dr. Colman O’Loughlin of the Mater Hospital and
Phyllis Cunningham Transplant Coordinator at Beaumont Hospital.

The  meeting aims to provide an overview of the medical and legal aspects of the organ donation process but will also present a patient’s perspective with heart transplant recipient John Healy of RTE’s The Restaurant talking about his experience.

The meeting is open to anyone wishing to learn more about Organ Donation and additional information can be found on the Forum on End-of-Life website  


New Seanad Public Consultation report on rights of elderly draws on findings of ‘Primary Palliative care in Ireland’

The Seanad Public Consultation Committee released its recommendation report on the rights of older people on Wednesday (March 28th).  The report calls on the government to put forward the case for the drafting of a UN treaty on the rights of older people.

Among a wide range of recommendations were transport allowances, reform of mental capacity legislation and a review of carers allowance payments to non-habitual residents.

The Irish Hospice Foundation (IHF) was among a number of stakeholders who informed the consultation. The  report outlines end-of-life care recommendations set out by the Irish Hospice Foundation including the development of a formal framework for delivering palliative care through primary care teams as detailed in the Primary palliative care in Ireland report.  These include the establishment of  24 hour palliative care advice service and the provision of specialist training in end-of-life care for General Practitioners, these steps should enable the more than 80 % people with end stage diseases who wish to die in their own homes to do so.

The full Senad debate with stakeholders from November can be accessed HERE  and report in full can be accessed HERE 


Primary Palliative Care in Ireland – New report launched

Author of the report, Marie Lynch; Development manager Irish Hospice Foundation (L) pictured with Irish Hospice Foundation CEO Sharon Foley

The Irish Hospice Foundation last week launched  its new report Primary Palliative Care in Ireland: Identifying improvements in primary care to support the care of those in their last year of life”.

The report, a collaboration between the Irish Hospice Foundation, the HSE and the Irish College of General Practitioners (ICGP) is the work of the Primary Palliative Care Steering Committee which was established in 2010 to embed palliative care in primary care settings.

Speaking at the launch of the report, chairperson of the Primary Palliative Care Steering Committee Dr Paul Gregan, acknowledged that with more than 90% of the last year of life spent at home, care for patients nearing the end of their lives is provided predominantly in a primary care environment. A recording of report author Marie Lynch, development manager with the Irish Hospice Foundation addressing the launch is available HERE 

In order to identify supports and work towards a formal framework for primary palliative care the Primary Palliative Care (PPC) programme conducted a survey in ten HSE Local Health offices during 2010. Survey findings outlined in the report indicate areas for skills development, service development and education. Some of the key findings from respondents include;

  •  A desire for enhanced communication skills for interacting with patients and families at end-of-life
  • Development of patient information transfer systems
  • Improvement of out of hours services
  • Training in end-of-life care

Taking the survey findings on board the programme now moves into the implementation phase.

You can download the report in full HERE or obtain a hard copy by contacting the Irish Hospice Foundation  on 01 6755975


Workshops in loss and bereavement 2012 brochure now avilable

 The Irish Hospice Foundation bereavement resource centre’s series of workshops on loss and bereavement will commence again on January 19th.

The workshops which address the spectrum of grief and loss are aimed at professionals and volunteers working in bereavement support and those wishing to learn more about bereavement theory and processes.

Workshops,  each of which are either one or two full day sessions run from January until late June with 23 titles being offered for the 2012 series. Topics covered range from suicide and addiction loss to communication skills for non clinical staff and creative arts in bereavement. Among the additions to the 2012 titles is ‘Grandparents grief; a complexity of losses‘ and ‘Final Journeys‘ a training input originally developed by the Hospice Friendly Hospitals programme to provide healthcare professionals with communication skills and insight to improve support and understanding around end-of-life care.

The workshops have accreditation of  two (for one day sessions) and six (for two days) CPD points from the Irish Association of Social Workers (IASW) and post registration category 1 from An Bord Altranis. Further details and booking enquiries can be made by contacting the Irish Hospice Foundation and the full brochure can be downloaded HERE

New publication builds on ethical framework for end-of-life care

A new book due to be launched by Cork University Press on November 16th develops and expands on the Ethical framework on end-of-life care produced by the Hospice Friendly Hospitals programme last year (more details HERE)

End-of-life Care ethics and lawwritten by Joan McCarthy, Mary Donnelly, Dolores Dooley, David Smith & Louise Campbell takes the eight modules of the ethical framework as its foundation.

The book draws on the body of research on the ethical issues in caring for patients at the end-of-life. It pulls together guidelines, codes of conduct, legal positions and bioethical perspectives to act as a multidisciplinary reference source for healthcare and legal professionals seeking clarification on these complex issues. Further details and context on the publication are available HERE.

Forum on end-of-life and launch of the ‘Think Ahead’ campaign – Podcasts

 On Wednesday (October 12th) the Irish Hospice Foundation’s Forum on end of life hosted its annual forum in Croke Park.

The day also saw the launch of the ‘Think Ahead’ campaign which aims to provide the public with a method of discussing and recording their end of life preferences and wishes. You can find out more about the project and fill in your own wishes on the ‘Think Ahead’ form’ on the new site HERE

For anyone who wasnt in attendance at the forum in Croke park you can listen to podcasts from the morning here

  • Recording of the morning session including the Mary Holland memorial lecture by Conor O Clery and response from Prof. Tom Inglis  – Listen HERE
  • Recording of the Mid morning session featuring the launch of the ‘Think Ahead’ website and address by an Taoiseach Enda KennyHERE (Click ‘download’  then ‘download anyway’ when link opens)
  • Recording of the afternoon session of the Forum on End-of-life Croke Park October 12 2011. Features feedback and audience questions on workshops, summary of the day by Ita Mangan and closing address by Irish Hospice Foundation board chairman Michael O Reilly. LISTEN HERE

Vote for Hospice Friendly Hospitals ‘Dignity by Design’ video

Dignity By Design from Angela Mezzetti on Vimeo.

‘Dignity by Design’ highlights the importance of providing personal, private and dignified spaces for patients and families at end-of-life and the Irish Hospice Foundation’s Hospice Friendly Hospitals ‘Design and Dignity‘ initiative.

This short film has been entered in the Better Together video competition which is highlighting the work of charities to the public by inviting them to vote for featured videos. You can vote for and share the video HERE