Lists of online resources and research material in End-of-Life care

The library has developed two subject comprehensive subject pages for the HSE Dr Steeven’s Library website, one on Palliative and end-of-life care and the other on bereavement and grief. They are a good starting point for insight and research into these subjects and can be accessed below. Access HERE  

Or use the Library’s custom search portal to search across selected websites and resources for bereavement, palliative care and end-of-life resources on the web

End Of Life Care & Advance Care Planning

Hospice Friendly Hospitals Programme – Ethical framework on End-of-Life care. Consists of 8 modules covering aspects of End-of-life care including decision making, patient autonomy and communication. 

Hospice Friendly Hospitals – Literature review on communication 

NICE – End-of-life care for adults Quality Standard

Published in 2011 these standards present clinical best practice in caring for patients at end-of-life

National end of life care programme UK

National end of life care publications. Includes standards and advance care planning guides

End-of-life Care Information – St Christophers Hospice

Comprehensive resource page compiled by St Christopher’s hospice & Marie Curie, it covers what to expect when someone is dying, self care for professionals and those caring for the dying and links for information after someone has died.

End of life care Intelligence Network

Comprehensive support site of the National End of life Care Programme  which provides links to data, analysis tools, profiles and resources.

End-of-Life care Quality Assessment tool

An online tool to aid in the assessment of EOL quality. The tool is free but you must register on the site before accessing.

Promoting excellence in end of life care

US site dedicated to promotion of quality in end of life care. Includes a useful listing of Advance Care Planning Tools

Stanford End-of-Life care Curriculum

Online modules developed by Stanford Medical School for training in End-of-Life care. The eight modules cover; pain management, communication in End-of-life care,  decision making, systems of care, psychosocial issues & implementing change.

Care search

Australian Palliative care knowledge centre with  links to extensive lists of resources and a search function for new publications

OMEGA – End of life care

UK association for the advancement of end of life care and the promotion of the UK end of life care strategy

NHS Map of Medicine – EOL care section

End-of-life care in adults assessment and care planning tool.

MedLine Plus end of life Issues

Portal for end of life care resources and publications.

Dying Matters UK

UK coalition aiming to encourage dialogue on death and bereavement issues

US national institute on aging

End of life issues page with links to resources

TIME – Toolkit of instruments on end of life care

Toolkit developed at Brown university for researchers measuring

Handbook for Mortals- online

Full access to this text electronically available through the Growth House website

Kings Fund Reading List on End_of_life_care_2010

This extensive reading list produced by the Kings Fund in 2010 includes texts, research articles and online resources.

Canadian Hospice Association advance care planning resource commons

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