Lists of online resources and research material in End-of-Life care
The library has developed two subject comprehensive subject pages for the HSE Dr Steeven’s Library website, one on Palliative and end-of-life care and the other on bereavement and grief. They are a good starting point for insight and research into these subjects and can be accessed below. Access HERE
End Of Life Care & Advance Care Planning
Hospice Friendly Hospitals Programme – Ethical framework on End-of-Life care. Consists of 8 modules covering aspects of End-of-life care including decision making, patient autonomy and communication.
Hospice Friendly Hospitals – Literature review on communication
Published in 2011 these standards present clinical best practice in caring for patients at end-of-life
National end of life care publications. Includes standards and advance care planning guides
Comprehensive resource page compiled by St Christopher’s hospice & Marie Curie, it covers what to expect when someone is dying, self care for professionals and those caring for the dying and links for information after someone has died.
Comprehensive support site of the National End of life Care Programme which provides links to data, analysis tools, profiles and resources.
An online tool to aid in the assessment of EOL quality. The tool is free but you must register on the site before accessing.
US site dedicated to promotion of quality in end of life care. Includes a useful listing of Advance Care Planning Tools
Online modules developed by Stanford Medical School for training in End-of-Life care. The eight modules cover; pain management, communication in End-of-life care, decision making, systems of care, psychosocial issues & implementing change.
Australian Palliative care knowledge centre with links to extensive lists of resources and a search function for new publications
UK association for the advancement of end of life care and the promotion of the UK end of life care strategy
End-of-life care in adults assessment and care planning tool.
Portal for end of life care resources and publications.
UK coalition aiming to encourage dialogue on death and bereavement issues
End of life issues page with links to resources
Toolkit developed at Brown university for researchers measuring
Full access to this text electronically available through the Growth House website
This extensive reading list produced by the Kings Fund in 2010 includes texts, research articles and online resources.