Palliative Care for all – Practice and Service Development project update now available

The Irish Hospice Foundation’s (IHF) Palliative Care for All programme, aims to extend palliative care interventions to non malignant life limiting illnesses.

Palliative care for all report 2008

Through this programme partnerships have been developed with a range of organisations to develop and deliver palliative support for diseases like Heart Failure, Advanced respiratory failure, Advance Neurological Illness and Dementia.

The latest update on these projects outlining  the activity of practice & service development projects addressing end-of-life care for people with dementia is now available.  The activities of the other aspects of the Palliative Care for All Programme are also outlined.

Palliative care for all communique July 2014

    Click to access the update HERE 

Therese Brady Library – Christmas & New Year Closing

Christmas_decorations_presents

The Therese Brady Library will be closed for the Christmas season from;

Friday December 20th reopening Friday January 3rd 2014 

Staff, students and Library members can continue to access the library catalogue and library electronic resources and databases online  (using your Athens Login)

Wishing you all best wishes for the festive season and a very Happy New Year for 2014.  

Library Ireland week 2012 at the Therese Brady Library

Library Ireland Week 2012 Nov 12-18

This week marks the seventh annual Library Ireland Week which runs from Nov 12th to 18th.  Library Ireland Week  provides a yearly showcase for the work of libraries, librarians and information professionals.

The theme this year is ‘Libraries for literacy; everyday, everyway‘ and the focus is on the many and varied ways libraries promote and develop literacy and learning.  The Therese Brady Library’s resources aim to develop, enhance and support the information literacy skills and learning of staff and students of the Irish Hospice Foundation as well as providing access to reliable information and supportive reading material on bereavement for the public. 

Staff and students of the Irish Hospice Foundation can book in for a short library fix session to brush up on their information skills. These sessions cover anything from effectively using the library catalogue and literature searching to setting up personal searches and alerts, getting the most out of searching the internet or just finding out more about the range of resources available from the library. Contact Laura in the library to book a session laura.rooneyferris@hospicefoundation.ie

Other events and literacy inputs are taking place in libraries all around the country, you can browse a listing HERE 

Happy Library Ireland Week !

New network to support bereaved children launched

Irish Childhood Bereavement Network (Picture Fennels)

The Irish Childhood Bereavement Network (ICBN) was launched yesterday (July 24th) by Minister for Children and Youth Affairs Frances Fitzgerald.

The network, inspired by the UK’s Childhood Bereavement Network (cbn) aims to act as a hub for  professionals and organisations working to support bereaved children and young people.

The establishment of the network follows a scoping study commissioned by the Irish Hospice Foundation and funded by the Family Support Agency, conducted by Dr Kathy Mc Loughlin. The study found that while good services for bereaved children exist there are geographic gaps to be met and that professionals working in children’s bereavement support would benefit from the  facility to share knowledge and information.

Professionals interested in joining the ICBN are invited to subscribe to the ICBN blog HERE for updates and developments

For further background on the network you can listen to an interview with Irish Hospice Foundation Bereavement Services Manager Dr Susan Delaney HERE 

A Wish – New animated video from the Hospice Friendly Hospitals Programme

How do you achieve a good death in an acute hospital setting ?

Although most people want to spend their last days in their own home almost half (48%) of all deaths in Ireland occur in an acute hospital setting.

Bridging this gap between patient wishes and hospital practice in end-of-life care has been the aim of the Irish Hospice Foundation’s Hospice Friendly Hospitals (HfH) programme.

A Wish’, the new animated short film developed by the Hospice Friendly Hospitals poignantly illustrates just how this can be achieved and the small changes that can enable a good death even in a busy acute hospital environment.

The film was directed by Rebecca Lloyd and will be made available through the Hospice Friendly Hospitals programme later this year.

Palliative Care for All – Conference September 14th

The Irish Hospice Foundation’s Palliative Care for all  programme will hold a conference on September 14th in the Royal College of Physicians.

The conference will present on three research projects developed through the programme  aimed at developing palliative frameworks and staff supports for dementia, advanced respiratory disease and heart failure.  This  video featuring interviews with the research project officers provides some  background on the three disease specific projects.

Professor Scott Murray head of the Palliative Care Research Group at the University of Edinburgh will be in attendance as  keynote speaker and delegates will have an opportunity to participate in breakout sessions on each of the disease specific areas.

You can register your interest by contacting Palliativecare.forall@hospice-foundation.ie

Organ Donation – Public Information Meeting

Gift of life organ donor care - Irish Kidney Association  The Irish Hospice Foundation’s Forum on End-of-Life will hold the second of  two public information meetings on Tuesday June 26th in the Alexander Hotel at 6pm

Organ donation – The Facts’ will be chaired by RTE Journalist Valerie Cox and speakers include Dr.  James O’Rourke: Intensive Care Unit Consultant,  Beaumont Hospital, Dr. Colman O’Loughlin of the Mater Hospital and
Phyllis Cunningham Transplant Coordinator at Beaumont Hospital.

The  meeting aims to provide an overview of the medical and legal aspects of the organ donation process but will also present a patient’s perspective with heart transplant recipient John Healy of RTE’s The Restaurant talking about his experience.

The meeting is open to anyone wishing to learn more about Organ Donation and additional information can be found on the Forum on End-of-Life website  

 

Public information meeting on Do Not Resuscitate orders and Organ Donation

 The Irish Hospice Foundation’s National Council of the Forum on End-of-Life will host two public meetings discussing Do Not Resuscitate (DNR) orders and Organ Donation in June.

These meetings, chaired by journalist Valerie Cox aim to provide members of the public with an overview of the topic, a medical and legal perspective and to frame both issues in the context of current practice.

The Do Not Resuscitate meeting which will take place in the Alexander Hotel on June 6th from 6-7.30 pm and will address the development of national DNR guidelines.

The second meeting examining the fact around Organ Donation will take place on June 26th in the Alexander Hotel from 6-7.30  and will feature speakers presenting the medical, family and patient perspectives.

Further details can be obtained by contacting Sarah Murphy on 01 6793188

World Hospice & Palliative care day 2011 – October 8th

  This Saturday (October 8th) is World Hospice & Palliative Care day, an international  day of recognition, promotion and support for hospice and palliative care.

This year the theme is ‘Many diseases, many lives, many voices – palliative care for non-communicable conditions” and the aim is to highlight the multitude of non-infectious diseases like chronic cardiovascular and respiratory conditions cared for in hospice and palliative settings.

Last month, the World Health Organisation published its ‘Global status report on non communicable disease 2010′  (Access report and country statistics HERE) which highlighted the growing health burden of rising rates of cancer, chronic respiratory disease and cardiovascular disease. UN leaders held a meeting on September 19th to address control and prevention of non-communicable diseases and highlighted the need for appropriate palliative care for all non communicable diseases (view Transcript of proceedings HERE)

Minister James Reilly speaking to the general assembly highlighted the need to care for patients ‘at lowest and most local level’ and organisers of World Hospice & Palliative Care day have called on citizens to hold leaders accountable for the palliative care needs of patients with non communicable diseases in a recent statement. 

The Irish Hospice Foundation’s ‘Palliative Care for All‘ initiative, developed out of the recommendations of the ‘palliative care for all‘ report aims to develop palliative care supports and interventions for patients with diseases other than cancer. Three action research projects focusing on patients with dementia, heart failure and advanced respiratory disease have been  in progress since last year. These projects are investigating and developing palliative care pathways for Irish patients with these chronic life limiting illnesses.

The Irish Hospice Foundation, in its statement ahead of of World Hospice & Palliative Care Day have emphasized the 17% increase in usage of their night nursing service to non-cancer patients. It also highlights the role that GPs play for terminal patients with 90% of care in the last year of life being delivered by primary care teams. The Irish Hospice Foundation’s new Primary care/Palliative care initiative aims to develop supports for patients with non malignant terminal illnesses in a primary care setting.

Details of events for World Hospice & Palliative Care day internationally are available on their home page and you can also share your stories and browse others’ insights on palliative care around the globe.