End-of-Life Journal – New open access publication

 St Christopher’s Hospice have launched a new open access peer reviewed journal for palliative and end-of-life care professionals.

End-of-life care which had ceased publication in 2010 will now be published quarterly and address end-of-life patient care, ethics, guidelines and best practice. The End-of-life care site will also host the full archive of previous volumes of the publication.

The site offers personal login and email table of content update options and the archive can be searched by topic, author or abstract and title keywords.

The current issue includes articles on body image in palliative care, communication skills for end-of-life care, ethics and deceit in dealing with advanced dementia patients and a professional issues feature on the problems of end-of-life care delivery in acute care.

For authors interested in submitting to the journal this can be done directly through the website. More details on submission and authors instructions HERE

Starting the conversation about death & dying

This week (May 16th – 22nd) marks the second ‘Dying Matters awareness week’ in the UK. The week aims to put a spotlight on all aspects of death & dying and get people talking about everything from where they want to die to wills, legacies and their funeral arrangements.

Though the events to coincide with the awareness week all take place in the UK the Dying Matters site is worth a visit as its packed with useful resources and conversation starters all aimed at smashing the taboos around death and dying.

The resource material includes ‘Things to do before I die’, leaflets and flyers to get you thinking about how to plan for a good death. There are even specific resource materials for schools and for GP’s.

If that all seems a bit weighty you can start off with the ‘Dying for a laugh’ videos in which comedians share their feelings and experiences about death – they include Ardal O’ Hanlon recalling a uniquely Irish wake experience. For information on attitudes to death and dying in an Irish context have a look at the Irish Hospice Foundation’s Forum on End-of-life website. 

NICE Pathways – new online resource

NICE pathways - new online tool

NICE (National Institute for health & Clinical Excellence)  have developed a very useful new online tool to illustrate and link their pathways and clinical guidance.

NICE Pathways provides a clear map of all evidence, appraisals, standards and  related material on specific conditions like diabetes, stroke or depression.  Pathways of interest to End-of-Life and palliative care practitioners  include dementia, chronic heart failure and chronic obstructive pulmonary disorder and the submenu includes details and additional links on  end-of-life issues in these conditions.

There is a useful video tutorial on the site which should help you get started using the pathways and demonstrate how to get the best out of searching the site.

Bereavement resources booklet – 2011 update available to download

Therese Brady Library - Bereavement Resources booklet 2011
Last year the library compiled a booklet of bibliotherapy titles for bereaved people informed by the Irish Hospice Foundations bereavement leaflets. The booklet has now been updated and expanded to include both public and professional support material as well as information about the Therese Brady Library and QR links directed to further resource listings in the resource sections of the blog.
The professional resources section  lists recommended titles and online tools for; palliative and end-of-life care, Bereavement theory and support, self care for professional carers, working with bereaved children and bereavement in schools.
You can download the booklet in PDF format here – Bereavement resources 2011